While spending time with my brother, we covered many topics. Sports mostly, management of friendships, trips, etc. He is aware my time is limited, and we're looking for paths froward to enjoy what time we have together.
That said, we had one issue in particular. It now may involve most of the reading I've done this past weekend and how some things are poorly being covered well.
First, I have two articles (which I will not post here because until I review them with doctors I won't claim this to be true, but I will explain why I believe it) which state the CDC blocks testing which has potential opportunity for several reasons. Mainly, CDC leans heavily into relations and trials pushing work and medical properties from Pharmaceutical companies. I have, indeed, seen that extensively with the trials I've been reviewing. It is ALL CDC promoted or approved. Secondly, a friend recently complained about CDC relationships regarding its pharmaceutical relationships and its efforts to block things which fail to raise money or results with pharmaceuticals preferred and/or managed by CDC and/or politicians. She gave me a specific example (which I cannot name) where she shifted her son to a different treatment that was NOT CDC approved for diabetes, and he had tremendous gains and improvements as a result using treatments from non-pharmaceutical doctors and medicine. Sometimes these stories are questionable, but hers is 100% accurate and has been mentioned often - while the CDC often tones it down and hides it.
Secondly, I have now found 5 websites I need to review with my doctors. One from a commenter I have wished thank you to - though I suspect the link isn't going to be helpful based on my reading, it is a doctor showing massive cancer successes - always worth conversations even if I may not be coverable. Several other websites were shared by other friends to me which have new treatments, again with the CDC opposing for no clearly evident support, that has shown some benefits in small trails seeking larger testing. It uses non-pharmaceutical medicines which have shifted to broader availability and easily attainable prescriptions AS WELL AS additional treatments. In particular, one is not seeking trials, but is a pro-methylation support and growth for HEALTH AND FOOD to engage improved methylations in people's bodies which often show declines. The doctor writing casually mentioned some cancers show non-methylation that may find results but did not mention testing. It utilized several B vitamins as well as several others to assist in methylation and protein improvement via DNA, for general people. I found this very interesting...yet never mentioned by any doctor.
Thirdly, my brother and I discussed concerns about reading many of these articles for a single reason. I am certainly not saying "I FOUND A SOULTION" because while I am hopeful, I'm also realistic. Probably nothing of value may come from any of these. However, lack of testing is distressing. That said, I am also aware of MANY of my friends who followed online ideas to assist themselves with other diseases or cancers and hoped for solutions only to be engaged in snake oils and misleading stories. That IS highly problematic, so I do try to engage careful reviews. Zachriel, in fact, once lied saying I was pushing some nonsense I certainly was not, many years ago and claimed I was following falsehoods. Later, my statement was fully proven - it was in fact the reason I began getting angry about this troll person and the lies and misleading approaches it often spread falsely.
My point of the third comment has less to do about the troll, who is truly useless mostly. I merely mention it because it still annoys the hell out of me. I am more concerned that I would like to see more things engaged effectively. Here is why. Steve McQueen was the example I shared with my brother to explain the need for carefulness in reading and reviewing stories of this kind. He had a severe cancer illness and went to Mexico for a treatment, which I called peach pits (having stumbled mentally over the name, which we did look up and found "laetril") as the solution he sought and received. It was a falsehood and many issues like this are sadly utilized. My brother also mentioned several people he knew who were aware of US issues in trial searching or lacking. Many people will leave the US for other nations (Latin America, Europe, Asia, etc.) seeking "trials" which often lead to nothing at all. The reason is far more problematic outside the US than it is here - but the CDC, because of its political and pharmaceutical relations, has some problems with trials, too. If there are more here, it is because of an overreaction to nonsense for cash to be made and political gains to be had. It's also very realistic, too, however. CDC DOES seek to end snake oils, and very rightfully so.
I, for one, would much prefer to have opportunities and I am willing to try things. One very real one I signed up for, but later dropped out of, was a very real trial. Sadly, it is partially showing no results of any kind for MY problem, nor is it showing any for many others. But it has had some effects with a few specific items but in very small percentage results. Over 5 years of testing has been merely "OK" and not "highly promising". Meanwhile, the one link I have found does not appear to be snake oil. It utilizes known options and has shown some results to very small numbers of people so far - but has had CDC reject it entirely for more trialing because it is non-pharmaceutical driven. That is odd, at best.
I am sure I'll learn more about a few of these. Also, if a doctor finds one that is promising, I doubt I'll benefit. But I'm happy to try things to help others ASAP. Being open and willing to test is critical. But so is being aware of falsehoods or being careful naturally. There are many items I've always been very careful of, for many years, though several people often claim it's all nonsense when it isn't...and some have claimed I pushed untrue stories when really I was airing interest with some question. (My favorite was cold fusion which I'd read and as physics was my original major for two years I had found it interesting and called my physics major friend running an electric firm in Idaho. He explained the oddity of cold fusion, but did say he hoped it was real. That early, even he said we were best approaching it with testing to approve it. Sadly, as we know today, it was pure nonsense. But even well informed people will want things like that to prove true)
